Ethics in Participatory Research for Health and Social Well-Being

Participatory research is now well-established as an approach; however, it can raise some unique and challenging ethical issues. This book introduces the key ethical concerns in participatory research before presenting seven thematic chapters, covering issues such as power, ownership, confidentiality and boundaries. The chapters each give an overview of the topic and include four real-life case examples written by people involved in participatory research along with a short commentary on each case. The case studies draw on a global selection of research projects concerned with health and social well-being. This comprehensive volume is an invaluable resource for all participatory researchers.

Sarah Banks is Professor of Applied Social Sciences, Department of Sociology and Co-director, Centre for Social Justice and Community Action, Durham University, UK. Mary Brydon-Miller is Professor of Educational Leadership, Evaluation, and Organizational Development, College of Education and Human Development, University of Louisville, USA.

Chapter 1. Ethics in participatory research Chapter 2. Partnership, collaboration and power Chapter 3. Blurring the boundaries between researcher and researched, academic and activist Chapter 4. Community rights, conflict and democratic representation Chapter 5. Co-ownership, dissemination and impact Chapter 6. Anonymity, privacy, and confidentiality Chapter 7. Institutional ethical review processes Chapter 8. Social action for social change